Monday, June 14, 2010

Noah's photoshoot

Full-body view of Noah, he looks like he's sucking his thumb, maybe. Omphalecele also apparent. (We learned how to spell it today.)

Noah's little legs/feet, crossed at the ankles. This is probably what's poking me every day...

Little fist! It's his hand, but his fingers are clenched so they're folded under.

Sucking on the umbilical cord...


Obviously he can't hear me tell him not to put that in his mouth....



Noah's boy parts! We had the tech, Jeff, show us because we found out he was a boy via amnio results. The big blob in the bottom left is his butt.  :)

We had an overall good visit with the doctor today. The Tech was disappointed when we had to schedule our next ultrasound while he is out of town. (Having to plan around Dave's schedule.) We had a minorly traumatic event as we witnessed a massive heart deceleration from 130s to mid 70s. So that was upsetting, but apparently not wholly abnormal. We spoke with Dr. Chao, who is our favorite, aside from Dr. Shipper. He has very good interpersonal skills. Dr. Chao arranged for a neonatologist from the hospital to stop by and meet with us. Dr Savid was helpful in discussing what options we have available - which aren't a lot, but we already knew that. We're planning on delivering at the Fresno hospital, where they'd provide some basic comfort care support. So overall, not a bad visit, but always emotionally draining. We're getting take out for dinner because a) we have no food and b) no energy to cook. 


Warning, the following includes judgmental comments. I'm just letting you know that I know they're judgmental. 
As always, we have many tales of the fall of the human race from sitting in the waiting room. Today's future-mom-of-notice was.... almost indescribable... Dave and I were unbelievably appalled. The office closes for lunch from 12-1pm. Having the appointments right after lunch are good because that hour gives the morning's rush time to even out, and you generally wait less. Well little-miss-Thang obviously didn't notice this, and continued to complain about the wait (they lock the doors until exactly 1pm). While we had to wait with her for 15 minutes, she drank a soda, pulled out some nothing-but-sugar-blue-and-pink candies, proceeded to announce to the other 10 of us waiting to get in that she was a gestational diabetic, but she didn't care since her due date is in 6weeks anyway. "I really shouldn't be eating all this sugar, but who cares." We also learned that this was her 7th child, (she's 31, I checked her birthday when I signed in.... come to think of it, she cut in front of me, but I don't care because I didn't want to have to deal with her); she has a baby girl, and a dead 12-week-old fetus in her that's causes extra fluid build up; she has the mentality of a 10 year old; she was wearing a tube top with a strapped bra. (Ok those last two aren't observations, they're judgements.)  I managed to avoid eye contact enough so that she didn't seek me out as a social companion in the waiting room (thank the Lord), but latched on to a 10year old boy who was there and talked about how many stitches and staples she'd had... There was also discussion of being in and out of jail, but I didn't hear the details, I don't think it was her that was in and out of jail, though, so that's.... good? 

Dave also thinks she's on welfare. Pure speculation, and judgement, but hey, if we can beat .007% odds and have a Trisomy 18 baby, it's almost a safe bet she's on welfare or unemployment. Or both.

When Dave and I over heard that she's had 7 kids, we just about lost it. How in the world can people like this get SEVEN kids and our FIRST has Trisomy 18? Why do bad things happen to good people, and why is stupidity continually recognized and rewarded in our society?!?!


5 comments:

  1. Oh, Annie. That's all I can say about that situation. I'm sure lots of people feel the same way. Please know that Noah, Dave, and you are in our prayers!

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  2. You don't know me but I subscribe to Google alerts for Trisomy 18 and have since we lost our second daughter to Trisomy 18 in 2008. Big hugs to you. I know it's hard, and I know emotionally draining those appointments are.

    When I was pregnant with Jenna, I worked as the Lifestyles Editor at a newspaper, and I was in charge of the birth announcements. One day a lady came in and dropped hers off. She had a newborn baby, and she reeked of cigarette smoke. Under siblings, she had eight kids listed, all with different last names.

    I am usually the least judgmental person you will ever meet, but I just lost it. I had to run back to the newsroom and let the receptionist deal with her.

    I have come to realize since then that I was entitled to those feelings, and you are, too. Big hugs to you.

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  3. I just popped over from Lori's blog and wanted to say that your Noah is just beautiful and precious!

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  4. Sweeta Lita (A & E's, Greg's momma)June 18, 2010 at 8:14 AM

    All three of you have been blessed in ways that may be forever hard to fully understand. Unlike the lady you rant about, Annie, you are very different and have been chosen to carry an angel of God. God created him with both of you in mind. HE knew you have the strength to carry on when things don't appear normal. Your pain is true, your cries are true, but your love is the truest. I am proud to say I know both of you. Stumbling on your blog was random, but, I believe God was helping me. He wanted me to see Noah's finest pics. On the day you were born God knew you would be an amazing mom and you have proven thus far to be. Carry HIS angel, for you have been truly blessed. Everyday, life is uncertain, and your blog has given so much of yourselves and is full of hope. Thank you and my prayers be with Noah and his family.

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  5. #1- I am so glad you have a doctor with good communication skills. My old boss at Riverside is focusing solely on training doctors on just that very subject: bedside manner. How glad for you I am that you have such good people around you.

    #2- I am sorry, but I had to giggle at your judgments because my daily interactions are with similar types of people. I guess you have to be all Southern and just simply say "Bless Her Heart, she doesn't know any better"

    You are so brave and I love you all as much as one could/can/will :)

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